tag:blogger.com,1999:blog-2527974255055966440.comments2023-04-10T04:32:44.499-07:00Raising A Child With HLHS...Momahttp://www.blogger.com/profile/14890580105726595398noreply@blogger.comBlogger23125tag:blogger.com,1999:blog-2527974255055966440.post-81649364289488766842015-09-17T20:01:09.312-07:002015-09-17T20:01:09.312-07:00I didn't realize this was the same blog I came...I didn't realize this was the same blog I came across 4 years ago when I first gave birth to my son with HLHS. Rosie is adorable and I hope things are going well. My son had his Fontan 2 years ago this month. He is in pre-k now and doing well. Please do an update on your sweet girl. Also, congrats on your RN! -Erin FosterWarwick Warriorhttps://www.blogger.com/profile/00802063887958370421noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-61664245628583567112014-04-05T06:03:06.109-07:002014-04-05T06:03:06.109-07:00Whew- tears flowing here! You have reminded me of...Whew- tears flowing here! You have reminded me of what is really important every day- to live in the moment, enjoy life's little treasures and spread happiness along the way! Beautifully written! We love you and the Irvin prayers will be in full force!Kellynoreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-5861223276229485422014-04-04T21:10:28.096-07:002014-04-04T21:10:28.096-07:00Beautifully written post, Rosie is such a little m...Beautifully written post, Rosie is such a little miracle and a inspiration to so many.No matter what her struggles she shows such great strength. She is a fighter and so is her family that stands behind her and gives so much encouragement and love. Continue to fight Rosie, you have so many people pulling for you and we will continue to pray for great thingsStacey Huey Colgannoreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-52662052088656838182012-08-06T10:56:49.009-07:002012-08-06T10:56:49.009-07:00You continue to be one of my favorite people in th...You continue to be one of my favorite people in this world! Rosie is very lucky to have you as a mommy, and I am very lucky to have you as my friend :)Katye Ghttps://www.blogger.com/profile/10399506448879869265noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-61391418311039265582012-07-15T19:23:50.178-07:002012-07-15T19:23:50.178-07:00You lived in Homer City, PA. I live in New Floren...You lived in Homer City, PA. I live in New Florence, PA. How nice to meet you! Our 3rd baby, Faith Ann, was born (unknowingly to us) with HLHS. She lived 9 days and went into shock. She's a walking testomony that God is alive and well. Doctor's said, she's too far gone, she won't make it thru the night. She is now 2 1/2 and going strong! She's quite the little spitfireAnonymoushttps://www.blogger.com/profile/13760648392633488616noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-60698265385746568342011-01-13T10:42:16.739-08:002011-01-13T10:42:16.739-08:00Hey! Someone who follows your blog joined mine tod...Hey! Someone who follows your blog joined mine today... when I was checking out her profile I saw your link. My son has HRHS... we were at CNMC for his first 2 months, home for 2 months and then there 6 more. He's been home for 12 months now!! My gosh, where does the time go. Point is, we speak the same language and must live in the same area???? Dr. J is our surgeon too. We should chat Leighannhttps://www.blogger.com/profile/15512788357302027665noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-40211835976121024052010-10-28T11:40:58.932-07:002010-10-28T11:40:58.932-07:00I have a suggestion for the G-tube issue! Lilly ha...I have a suggestion for the G-tube issue! Lilly had the same problem, that is when we changed to a AMT Mini One Button. This is a non-balloon and has worked wonders! If you need anything drop me a line @ naomi_jewell@live.comNaomi and Paulhttps://www.blogger.com/profile/04645415716988963192noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-50676270796382908022010-08-08T23:59:03.930-07:002010-08-08T23:59:03.930-07:00Thank you so much for that. I am trying my best to...Thank you so much for that. I am trying my best to get through everyday as best as I can. Being positive is exhausting and a conscious effort on my part and I am willing to move mountains to better my twin son with HLHS.<br /><br />Aloha from Hawaii,<br />Team Miyasaki<br />Www.miyasakitwins.blogspot.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-48261004402698966532010-08-06T13:49:03.151-07:002010-08-06T13:49:03.151-07:00I'm so glad your little one is doing better! ...I'm so glad your little one is doing better! We went to see Allison last night at Rockwood and I closed my eyes for a second and felt myself transported back to the Cecilia days. Best wishes! -ChristianChristian Alberto Ledesmahttps://www.blogger.com/profile/10987007573579242607noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-59887878884731501432010-05-12T19:34:25.779-07:002010-05-12T19:34:25.779-07:00Absolutely beautiful! Amen!Absolutely beautiful! Amen!Josh, Sandy, Jaclyn, Kinsey, and Calebhttps://www.blogger.com/profile/06302256433469605256noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-26612294532401942010-05-12T10:54:49.720-07:002010-05-12T10:54:49.720-07:00You and Rosemary are 2 of the most beautiful souls...You and Rosemary are 2 of the most beautiful souls I have ever met and I am so honored to have you in my life, and to have shared a small part of yours. Not a day goes by that we don't think of you and pray for you.<br /><br />Love,<br />KatyeKatye Ghttps://www.blogger.com/profile/10399506448879869265noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-6732471134426420792010-04-13T19:26:11.124-07:002010-04-13T19:26:11.124-07:00Yay Rosemary!!! We are so excited for all of you ...Yay Rosemary!!! We are so excited for all of you and can just picture you playing anf running and wiggling. We miss you dearly but know that there is no place like home.<br />All our love,<br />The Gormans :)Anonymoushttps://www.blogger.com/profile/13118204058444921594noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-2980412914984225592010-03-14T05:35:20.082-07:002010-03-14T05:35:20.082-07:00Amen! Rosie is truly amazing! Praying for contin...Amen! Rosie is truly amazing! Praying for continued and complication free progress! God is good.<br /><br />love<br />Sandy HughesJosh, Sandy, Jaclyn, Kinsey, and Calebhttps://www.blogger.com/profile/06302256433469605256noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-84170583578229858882010-03-11T04:14:55.263-08:002010-03-11T04:14:55.263-08:00That's wonderful news!!! I pray for a sense o...That's wonderful news!!! I pray for a sense of peace with the plan of action that is chosen. Hope you can stay here in DC!Josh, Sandy, Jaclyn, Kinsey, and Calebhttps://www.blogger.com/profile/06302256433469605256noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-5904861785309416802010-03-09T17:39:42.912-08:002010-03-09T17:39:42.912-08:00Rosie is so precious! She is in our prayers.
Kell...Rosie is so precious! She is in our prayers.<br /><br />Kelly Manz<br />http://chdbabies.blogspot.comkelly manzhttps://www.blogger.com/profile/01237677633666557609noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-44254643435212112622010-03-09T14:36:28.207-08:002010-03-09T14:36:28.207-08:00I found your blog via Mississippi Mended Little He...I found your blog via Mississippi Mended Little Hearts facebook page. I just wanted to reach out to you. <br /><br />I am about 18 months behind you on this heart-baby journey. My heart goes out to you. Thanks for sharing your story, your insights, and your resources.RainSplatshttps://www.blogger.com/profile/07597344714799412549noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-25915964971760399212010-03-09T03:50:16.755-08:002010-03-09T03:50:16.755-08:00Oh Lori I wish I had words appropriate to console ...Oh Lori I wish I had words appropriate to console you in such a difficult situation. Maybe there are none, but please know that you aren't alone, that there are so many people you don't even know lifting you up in prayer. I am also a heart momma, although my daughter has TGA, not HLHS. Dr. Jonas and Children's offered us hope when we didn't find much elsewhere. <br />My familyMended Little Hearts of Central Virginiahttps://www.blogger.com/profile/07073645415370758416noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-23070244207234174962010-03-08T23:11:34.113-08:002010-03-08T23:11:34.113-08:00I am very glad u can share ur feelings too mose pe...I am very glad u can share ur feelings too mose people keep it in and explode. Not only is it good to hear about Rosie but it is also good for u to let ur feelings out to the world. U KNOW GOD GAVE U A SPECIAL ROSIE BECAUSE HE KNOWS U ARE SPECIAL TOO AND CAN TAKE CARE OF HER AND DO WHAT ROSIE NEEDS U TO DO FOR HER.... U ARE ROSIE'S ANGEL AND SHE IS YOUR ANGEL.jparker601https://www.blogger.com/profile/17163709048099662560noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-21674235202350844832010-03-08T23:04:22.973-08:002010-03-08T23:04:22.973-08:00LITTLE Rosie is beautiful....GOD will give u the w...LITTLE Rosie is beautiful....GOD will give u the wisdom and guide u to do what is right for her...GOD BLESS ALL OF U....jparker601https://www.blogger.com/profile/17163709048099662560noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-13179569649465033922010-03-08T20:30:27.328-08:002010-03-08T20:30:27.328-08:00I want to drive to you and hug you. I don't h...I want to drive to you and hug you. I don't have words of wisdom or any advice. I want to hold you as a Momma too and tell you that God will take care of you. But I am tearing up as I write this. I will pray for you Lori. I have followed your story since Rose's birth , through Brie and now Fb, I will pray for you. That's all I can do, and Know that we are here for you in any way.aokstableshttps://www.blogger.com/profile/05865050732665576962noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-33886557496796603772009-11-14T10:41:20.242-08:002009-11-14T10:41:20.242-08:00Lori, I am so sorry to hear that you are back in t...Lori, I am so sorry to hear that you are back in the hospital. It is scary that her o2 levels were so low. You must have been panicked. Glad to hear that she is on oxygen and getting the rest she needs. <br />I hope that you guys get better soon and you can go home for good.<br /><br />In a way, I feel better now for not going to the hospital, it would break my heart if I had gotten someone Unknownhttps://www.blogger.com/profile/14272121504714850432noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-16024522650271254602009-02-11T11:24:00.000-08:002009-02-11T11:24:00.000-08:00Who would have ever thought that a little girl fro...Who would have ever thought that a little girl from Homer City would one day grow up and write such a beautiful, moving tribute to her own daughter. I know that it too often seems like "the road is long," and in your case, "less travelled," but with your strength and the help of your wonderful family I know that the light at the end of the tunnel will be the sun shining on you and Rosie. The Sicilian librarianhttps://www.blogger.com/profile/06725145633199799661noreply@blogger.comtag:blogger.com,1999:blog-2527974255055966440.post-87692639773712087462009-01-15T13:56:00.000-08:002009-01-15T13:56:00.000-08:00HOOORAY FOR ROSE !!!!!!.....THAT IS SOOOOOO GREAT!...HOOORAY FOR ROSE !!!!!!.....THAT IS SOOOOOO GREAT!!!!!!Anonymoushttps://www.blogger.com/profile/01850360751820762567noreply@blogger.com